Medical update

 Medical update: Hospitalized due to GVHD of gut and liver.
Gut is healing slowly but getting much better and I’m able to eat more, however, my liver isn’t so cooperative at the moment, bilirubin levels are high, (life threatening high) and failure of the organ is a huge concern. Fortunately the FDA just approved a drug called “Defibrotide”, my medical team at NIH got it and was able to start treating me right away, this drug is given several times a day. Since I’ve started Defibrotide my bilirubin levels have dropped but also came back up, this shows I’ve reacted in a good way but I’ll need to do a full treatment to get the best results. I was scheduled to be released April 13th but now have been asked to stay for another 2 months at NIH, I’m humbly accepted. No need to rush home and have a poor quality of life or high risk of organ failure, I’m glad for the opportunity and time to heal. 1,2,3,4… One day at a time. #SPYDASTRONG