Another update

FYI: just got readmitted to the hospital, I’ve been having headaches again so dr. Ito. Did a lumbar puncture๐Ÿ˜” yesterday and also ran some other test. I’m feeling a little better and the test results are mostly great, currently getting some infusions but if all goes well, hopefully I’ll be released by Tuesday. #spydastrong // the journey continues 

Medical update

Not sure where I left off but please forgive the abrupt start. Earlier this year I was admitted February to June for complications from GVHD, at the end of August I started to experience really bad headaches, they felt like migraines but everything I usually tried previously for my migraine relief didn’t work. I let my doctors know right away and they started to look into it… That was a very busy time for me since TTS was right around the corner I remember my mind and body really exhausted because not only was I in the hospital for months, I was still taking lots of Meds, wasn’t as strong and had to use a cane sometimes to walk… anyhow, fast fwd to sept 10th, the day of TTS( of all days)… the night before I remember being in so much pain that I couldn’t sleep ๐Ÿ˜ž, I responsibly took every pain Med that I thought would work but no relief, next thing I remember is my brother waking me up and he said he has to take me to the hospital right now… then I woke up in the ICU a week later I think). I had a stroke on the right side of my brain, suffered a couple seizures and diagnosed with Meningitis (brain infection). The headaches were cause from pressure on my brain, the solution,lumbar punctures/ spinal taps, lots of them๐Ÿ˜ฉ but I’m grateful to be alive and I now have one of my toughest battles ahead and that’s recovery.. my true friends and family never left me out was always there for me and that’s NOT easy, trust me., I’ve been through it over the past year or 5 years I hurt in places I didn’t even know I had but I’ve always been a warrior,( skilled fighter) so I know how to prepare for a battle, #SPYDASTRONG //

This would be a great time to say I’ve always had the greatest doctors and nurses, at WHC and now NIH, โ˜บ๏ธ, oh, my Doctor Dr. Sawa Ito gave a new name” Miracle” but only she uses it, i think it’s cool, she says it’s fitting, ๐Ÿ˜Ž // My Mom took this pic on sept 20th, sorry she had to see me like this but things soon sort out!! // I was discharged the day before thanksgiving, still can’t walk w/out a walker but I’m working on that and life is nice, zero complaints 1,2,3,4 one day at a time!!

24/7 migraine now 24/7 headache…

First procedure I couldn’t make it through, tapped out… But got full sedation ๐Ÿ˜œ for the other one AND the Doctor’s son is in a band, told me he’s the roadie (lol) so we had the greatest convo before he drugged me up. I really do have a blessed, unique and wonderful life…

2 years ago today.

Sometimes I wish I had the equivalent to a check engine light… So that it’s clearly visible that I’m not “firing on all cylinders”… Even though it seems like I’m moving fast and doing a lot, doesn’t mean that I’m feeling great, I honestly haven’t felt great in 3 years, but there’s been ups and downs during that time… But definitely not great times. For the past month it’s been such a physical struggle and a lot of stuff hurts or itches, this morning I asked myself why am I even getting out of bed, no one that feels like this should get out of bed, then my mind somehow just made my body get up and roll out, EVERY MORNING I wonder how I do what I do and still manage to keep my composure. Maneuvering life as a “normal person” has it’s own challenges within itself, so I know most folks face some type of struggle, even with no health issues I know that one could still have their bad days but, I can only speak from what I know and live daily… This “lymphoma bizness” is the real deal, no lie no mamaguy… A very high percentage of my strength is mental, I don’t know how I’m able to will myself (yes, because I literally pick myself up daily) to keep going but I do, and I appreciate everyday that my mind and body can agree that we’re going to keep fighting. This is why most ppl’s problems/issues don’t matter to me anymore, because I got more than enough going on and I wake up, give thanks for life and deal with my challenges, no complaints, just hopes that I can always make it through another day… I got this, but just know it’s not easy.

4 years ago today.

4 years ago… I’ve been very open about me journey since the day I was diagnosed w/ Lymphoma in August 2012, these post were never or currently meant to draw attention, just me simply documenting some of my everyday experiences, whether they’re considered good/bad, interesting or use less they’re mine to cherish and preserve. I live for me, my family and loved ones, don’t study ppl, just be… Good morning and make it a GREAT day World ๐Ÿ˜Š